October 21, 2012

Guest post - "Greatness because of Diabetes"


Emma & Mini-Type1Rider 


Type1Rider.org is pleased to present a Guest post from one of our favorite Dmom's, Author, Advocate, and Creator (with her Daughter Emma) of 'Diabetic Barbie'...Amy Ermel. We also would like to express our most profound gratitude for the masterpiece in creating BY HAND, the Type1Rider Outfit pictured above. If you would like to inquire on how to get the accessories available for Girls & Boys (Including the Outfit in the picture), you can contact Amy HERE

First of all, I would like to say that I am honored to be writing a guest post for Type1Rider.org, thank you very much for the opportunity! 

My daughter, Emma is 8 years old and was diagnosed with type 1 diabetes 4  years ago. Since that day, I have learned so many things to say the least. I think I would like to dedicate this post to one in particular though...greatness.

When the doctor walked in the room and gave us the official diagnosis, I never would have thought that anything great or positive could have come of it. I thought that we were destined for a life of battles with food, needles, blood sugars, and insulin. I thought that it would consume us and take over every single aspect of our lives. I thought that there could never possibly be anything that would shine some light on our now darkened spirits. Boy was I wrong!

A mere 5 months after Emma was diagnosed, she approached me and asked if we could set up a lemonade stand out front of our house to raise money for "the people looking for a cure." She looked up at me with such innocent and determined eyes, that there was no way I could say no.

Seeing as how it was November, we convinced her to switch it to hot chocolate..contacted JDRF, made a few phone calls....and managed to raise $1200 in 3 hours time on November 14th (World Diabetes Day). As I sit here now thinking of that night, I can remember her face....her little 4 year old face...standing there with such hope in her eyes. She was on marshmallow duty naturally...what other job would a 4 year old want, right? She stood there for 3 hours filling cup after cup with marshmallows, chatting with hundreds of people about her diabetes, telling them that she was helping to find a cure. To say I was proud, would be the understatement of the century. That night was one of the first moments that I saw her "greatness". I saw the incredible amount of potential and drive and determination that lies within a person living with diabetes.

One day last year, Emma came home from school and told me that her friends had been talking about how there was going to be a bald version of a Barbie doll made to support kids dealing with cancer and other diseases involving hair loss. She once again looked up at me with those same innocent and determined eyes and asked me so matter of factly why there wasn't a doll out in the stores that had diabetes. I decided to make a toy insulin pump and blood sugar meter for her to play with on one of her own dolls. I thought there is no way that I could ever take on a toy manufacturer and help her make this dream a reality. I thought that it would just be left at that...a toy for only her to play with.

Well, Emma decided that she wanted other kids to be able to play with them too. She wanted other kids to have something that made them feel special. She wanted to keep going with this idea...and really, with that greatness and that drive that lies inside her....who was I to say no? So, we created a Facebook page to gain support for our campaign to make this a reality available in stores...and we have nearly 6,000 supporters.

I think back to that day of diagnosis and I want to wipe away the tears of that old me and force myself to look at my daughter through clear focused eyes. I want her to see that greatness...that drive...the flickering light that is the embers of hope that burns from her gaze. I see it now. I see it and I know that no matter what this life throws our way and no matter how many times diabetes tries to bring us to our knees.....we will make it. We will do better than just make it...we will leap over every hurdle with style and we will make things happen. We will make change happen all because of her greatness.

You can visit Amy's Blog HERE

To purchase a "virtual cup of hot chocolate" to help Emma support JDRF, please click on the following link: http://www.canadahelps.org/GivingPages/GivingPage.aspx?gpID=21134

To support Emma in her dream of a Diabetic Barbie, or other doll[s],  please click on the following link and click "like" on her Facebook page and share with others to spread the word! : http://www.facebook.com/DiabeticBarbie 


October 5, 2012

The final part of my series about the 2012 Tour Divide is now up and available on the OmniPod Suite D blog site.

It has been an honor to be able to share these thoughts about my Tour Divide race with all of the members of the DOC.  Thank you for supporting me and for taking the time to read about this adventure.





Anything, really is, indeed, possible.  It truly is.

I look forward to blogging for Insulet over the next months, and sharing my experiences with all! 


Keep Choppin' everyone. 



Just.



Keep.



Choppin.
Friday's installment of my 2012 Tour Divide thoughts and experiences is now published on the OmniPod Suite D blog.  Endurance bicycle racing is eerily similar to living with diabetes....





Thanks everyone!!

Keep Choppin'!!!!

October 4, 2012

Attention all NC Tour de Cure's Mystery Mountain Bike Riders. We're so excited to have you all on board to experience this inaugural event. Please be sure to arrive between 11:00am and Noon to allow time for check in and getting your bib nu
mber.

The event is at 1089 Municipal Drive in Chapel Hill, NC, off of MLK Boulevard. We'll have volunteers directing traffic. You can ride as many or few laps as you like between 12:00pm and 3:17pm. We'll have Clyde Cooper's BBQ, Clif Bars and Shot Blocks, Powerade and water for you on site.

We'll have a prize for the best Halloween costume and all participants will receive FREE registration for the 2013 NC Tour de Cure AND $25 off registration for the 2013 Resolution Ride!

We also would like to announce that we may have a few celebrities on site, including NASCAR driver and Type 1 diabetic Ryan Reed! We'll keep you posted on the details! Share this event with your friends and tell them to use code: MTBVIP to get 50% off registration! See you on the 13th! Please reach out to us if you have any questions at all!

Best, Katie-Rose Darby & Tony Cervati kdarby@diabetes.org | tony@type1rider.org 919.743.5400 x3251



Installment number 4 in my week long 6 part series about the 2700+ mile 2012 Tour Divide mountain bike race has been published to the OmniPod Suite D blog.

Included in this segment is how I would normally sleep while participating in this race.  A little inside look at my home away from home.  :)

Thank you for the interest and excitement surrounding this, and I hope you enjoy today's first entry!








October 3, 2012

Today the 3rd entry in the 6 part week long series detailing my 2012 Tour Divide race attempt was published on the Suite D Blog by OmniPod.

Things get a little more series today, with a range of emotions from total euphoria to the encountering of a serious problem.

Again, my heartfelt gratitude and thanks for all the requests about this subject.


Tony Cervati’s Tour Divide Journey Part Three: Standing Up to Old Ghosts…and on Rotted Logs

(BTW - just a humorous aside... the video included in this segment was filmed by my 7 year old son.  Didn't George Lucas start about that age too?  LOL!!)


October 2, 2012

Part 2 of my 2012 Tour Divide race was published to OmniPod's brand new Suite D blog this afternoon.

Thank you SO VERY MUCH for the continued interest in this story.


October 1, 2012

Time has passed quickly since my 2012 Tour Divide attempt ended back in July.  During that time period I was honored to be asked to write for Insulet Corporation the makers of the OmniPod on their very newly launched Suite D blog.

Myself and the team from Insulet figured the best way to kick this relationship off was to chronicle my Tour Divide adventures this year on their new platform.  

I couldn't be more thrilled!!

Although it took a bit longer for me to complete the entries than I first thought i tmight, Part 1 of a week long series of posts (6 in all) is out today.  The other 5 parts will be published, one or two a day, for the rest of the week.

Thank you for ALL the support and encouragement you have provided to me while I prepared for, and raced in, this history making event.